dash 4 dEBra 5k
Events
| dash4dEBra 5k : Off Road |
| Running : Run 3.1 Miles |
- Race Date: Sunday, June 7, 2015
- Start Time: 9:00 AM
- Entry Fee:$30
- Location:Lake Forest Academy
- Address: 1500 W. Kennedy
- City/State/Zip:Lake Forest, Illinois 60045
- Country: USA
- Registration Website: http://dash4debra.org
- Race Website http://dash4debra.org
- Telephone: 8479246646
Epidermolysis Bullosa (EB) is a rare, genetic, connective tissue disorder affecting 1 out of 20,000 babies born in the US each year. It is the worst disease you’ve never heard of. EB victims have extremely fragile skin that blisters and tears from minor friction or trauma. This affects the outer skin, internal organs and body systems. EB is painful and in some cases fatal before the age of 30. There is no treatment and no cure for EB. Daily wound care, pain management and protective bandaging are the only options for the individuals who are suffering from this disease.
Please join me on Sunday, June 7th running to support those afflicted with EB. The money raised for this event will go to support research, provide medical supplies to families and patient access to specialists. Many patients with EB travel out of state for care and support, and many insurances do not cover the supplies needed for these patients' care. debra of America is the only national nonprofit organization dedicated to fund research and provide supportive services and programs for those with EB. 89.4 cents of every dollar donated goes directly back to the debra organization.
For more information on EB and/or debra of America please visit debra.org. I thank you in advance for helping me take a step closer to finding a cure for EB!
Course Information:
Lake Forest Academy (1500 West Kennedy Rd. Lake Forest, IL 60045)
The course will be the high school's cross country trail. Please no strollers or pets on the course.
Directions:
From I-94: Take the IL-60 exit toward Town Line Rd. Merge onto W. Kennedy Rd/IL-60 east. Lake Forest Academy is approximately 1 mile down on your left.
From IL-41: Take IL-60 exit (you can only go west) approximately 1 mile and Lake Forest Academy will be on your right.
Other Info:
Please keep in mind that the registration fee increases to $40 on May 23rd, so register early! Race day check-in begins at 8:30am.
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