The NY-NJ Region of the Huntingtons Disease Society
of America (HDSA) will be hosting the First Annual Ann's 5K Race and Kids Fun Run Team Hope event
on May 18, 2013 at Klumpp park. The Team Hope program is HDSAs
largest grassroots event, being held on over 85 cities across the country. All proceeds support HDSAs
fight to improve the lives of people affected by Huntington's Disease (HD) and
their families. Ann's 5K was started to honor a brave woman, Ann Tripp, and her
struggle with HD. She has always held onto the kite strings" for her
family so they could move on and live life to the fullest. They want Ann to
know they are holding onto to that kite string for her as she smiles everyday
dealing with this debilitating disease.
be awarded to top 3 male & female runners and medals for top 3 in each age
group. A special trophy will also be awarded to the top fundraiser.
Registration begins at 7:30am and the race kick off
beings at 9:00am. The HDSA is asking for support of the community to become a
sponsor, form a team, donate products, or volunteer to coordinate the event
activities. Registration is available through our website: www.hdsa.org/thwbroome Team Hope is a fun, family-friendly event.
Huntington's disease (HD) is a
devastating, hereditary, degenerative brain disorder that results in a loss of
cognitive, behavioral and physical control, and for which, presently, there is
no cure and only one FDA-approved treatment for a symptom of HD. HD slowly
diminishes the affected individual's ability to walk, think, talk and reason.
Symptoms usually appear in an individual between 30 and 50 years of age and
progress over a 10 to 25 year period.
Cases of juvenile HD have been diagnosed in children as young as two
years of age. Eventually, a person with HD becomes totally dependent upon
others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD.
Each of their siblings and children has a 50 percent risk of developing
the disease, therefore 250,000 are at risk. Although medications can
relieve some symptoms in certain individuals, research has yet to find a means
of conquering or even slowing the deadly progression of HD.
To volunteer or support Ann's 5K, please
contact Sarah Katerle, Regional Development Manager at (585) 643-5239 or by